When the Path Changes
When Renna was born on February 29, 2020, I imagined a future that looked a lot like the one many parents picture. I assumed we would follow the typical milestones and rhythms of childhood. Like most parents, I thought that with time and encouragement she would simply grow into each new stage.
Over time, though, it became clear that Renna’s path was going to look different.
Eventually we received the diagnosis of Pitt Hopkins syndrome, a rare genetic condition that affects development, communication, and mobility. Hearing those words changed how I understood the road ahead. Suddenly our world included therapists, specialists, research, insurance questions, and systems I had never navigated before.
There were moments of grief and uncertainty. I had to let go of some of the expectations I had originally imagined for our journey as a family.
Learning to See Progress Differently
But something else happened too.
I began to see the world through Renna’s eyes.
Renna works incredibly hard every single day. Things that many people take for granted require patience, persistence, and support for her. Watching her determination has changed how I think about progress and success.
One of the moments that will always stay with me is when Renna began walking independently. For a long time we weren’t sure if that milestone would come. Seeing her take those steps after years of therapy and effort reminded me that progress doesn’t always follow the timeline we expect.
And that’s okay.
Renna has taught me that there are many ways to move through the world. Just because something looks different doesn’t mean it is less meaningful.
She also has an incredible ability to connect with people without words. Renna is non-speaking, but her curiosity and joy have a way of reaching people the moment they meet her.
Anyone who spends time with her quickly realizes that she belongs everywhere she goes.
Why I Created Renna’s Corner
This journey has stretched me in ways I never expected. I have learned how to navigate therapies, equipment, insurance systems, and daily routines that often require extra creativity and patience.
Along the way I’ve spent countless hours researching products, resources, and tools that might make our daily life a little easier.
That is part of why I created Renna’s Corner.
I wanted a place where I could share what I’ve learned with other families who might be navigating a similar road. A place where parents can find helpful products, fundraising ideas, and real-life encouragement from someone who understands the challenges that come with raising a child with complex needs.
If you’re on a similar journey, I hope this space reminds you of something important.
You are not alone.
Every family’s story looks different, but there are people who understand the path you’re walking.
And sometimes the most meaningful progress happens in the moments we least expect.